Sometimes people in marginalized or impoverished situations get invited to participate in surveys, group sessions and focus groups. What I wonder is, who are these data collection gatherings actually for? In theory, the basis is to help the marginalized and/or impoverished to receive better access to the necessary services. Of course, these services are in fact defined by social and government designs. What does this mean? Well for me - being considered "marginalized" or “living in poverty,” I get to participate in the process that will inevitably help me maneuver through the system. A system designed with bias.
The majority of the North American population are not required to live in constant survival mode and likely do not understand what true survival actually is. The average person usually thinks of survival as the most obvious and basic items such as clothes on your back, stay close to food and water, have a place to get rest and find a way to get from A to B. There’s much more to survival.
I have tried to work with my disability, however I have a lot of challenges. I was unable to do anything with my hopeless state of mind and my body. Because of this, I have lived on AISH my entire life. This can be isolating, I don’t have the means to do the things I want or buy things I may need. There’s so much I would like to have or do while I am still alive, but I am unable.